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Monday, July 30, 2012
Friday, April 13, 2012
Tools of the Trade
I've been getting a couple messages from other amputees wanting to surf and videos of them getting out there. I love it! Makes my heart smile. The question I always get is what prosthetic I use. I'm going to break it down here for all of you shredders.
My surf leg (that I also skate, rock climb, hike and camp in) is made from old parts that I had lying around. Nothing fancy. I'm on a budget and I know what I need to get the job done. That's the ability to trust my prosthetic. That's crucial when you're out there in the water. It's hard enough to surf with one real leg. I don't want to worry about it falling off or the knee unexpectedly breaking on me.
My surf leg is a basic hinge knee that I had locked in an athletic stance. The "knee" is locked with casting material. For the knee, you can just go to a hardware store and rig it up if you don't have access to one. The leg is bent at the knee and ankle. For the ankle, you'll need an angle adjuster(I don't know if this is the proper term but I'll have pictures). My surf leg is shorter than my everyday walking leg. Surf leg stands at 79cm. Walking prosthetic is 89cm. Having it shorter is crucial. It allows you to crouch down somewhat.
That screw is awesome. I only have a couple that I've been using for years. It has a wide, flat head so the velcro strap never comes off. That was an issue I had in the past with other screws.
This is how the system works. I've also used the KISS system which was amazing. It's double suspension that eliminates all rotation of the socket. I'm sensitive though so the placard irritated my stump. I'll only use that method now when I snowboard.
When I surf I always wear a wetsuit. If the water's warm, I'll wear scuba shorts. This is because the leg will start to come off a little. I've never had it completely come off before but when it starts to slip, it hurts. A wetsuit folded up or even cut on the side of your prosthetic up to the knee is a life saver.
I'm missing my right leg and I'm regular foot so I wear my leash on my left(front leg) to prevent pulling on my prosthetic.
Well, that's it! Easy Peesy, right? Please send me videos and pictures of you out there ripping. I love it and I hope this helps!
Thank you, Michael Stull and RGP Prosthetics for all your love and support. Thank you Challenged Athletes Foundation, Adaptive Action Sports, Symbiotechs USA, Hawaiian Pro Designs, Chris Grant, JettyGIRL online surf magazine, Ryan Levinson, Oscar Loreto, NMCSD, and my amazing friends for... everything.
Now, get out there! ;)
My surf leg (that I also skate, rock climb, hike and camp in) is made from old parts that I had lying around. Nothing fancy. I'm on a budget and I know what I need to get the job done. That's the ability to trust my prosthetic. That's crucial when you're out there in the water. It's hard enough to surf with one real leg. I don't want to worry about it falling off or the knee unexpectedly breaking on me.
My surf leg is a basic hinge knee that I had locked in an athletic stance. The "knee" is locked with casting material. For the knee, you can just go to a hardware store and rig it up if you don't have access to one. The leg is bent at the knee and ankle. For the ankle, you'll need an angle adjuster(I don't know if this is the proper term but I'll have pictures). My surf leg is shorter than my everyday walking leg. Surf leg stands at 79cm. Walking prosthetic is 89cm. Having it shorter is crucial. It allows you to crouch down somewhat.
Here is my surf leg. I wrapped the pylon and knee with pipe insulation and electrical tape. It helps prevent destroying your board.
Angle for the ankle. I don't have anything to measure the degree.
The knee. It's attached with a pyramid set up.
Front view.
Front view 2.
Here's a view of the angle adjuster I was talking about. Not the best picture but I couldn't get past the duct tape without my foot coming apart ;). The foot on there was one I had lying around. I've been using it on this leg for two years and it's finally kicked the bucket. I rarely have issues with the foot slipping off the board. I forget the name... sach or satalite... I don't know.
This is a comparison of my everyday leg(c-leg) and my surf leg.
For all my sockets, I use the lanyard system. I love this method because it's quick and easy to remove and put on the leg. I sweat a lot so that crucial. Besides that, I trust it more than having something like a suction system in the water. I've never tried the pin system because my residual limb is too long. That's also an Iceross Liner from Ossur.
Edit: I should mention that you should have a separate liner for surfing. There's some gnarly stuff in the ocean that you don't want in your everyday walking liner.
Edit: I should mention that you should have a separate liner for surfing. There's some gnarly stuff in the ocean that you don't want in your everyday walking liner.
When I surf I always wear a wetsuit. If the water's warm, I'll wear scuba shorts. This is because the leg will start to come off a little. I've never had it completely come off before but when it starts to slip, it hurts. A wetsuit folded up or even cut on the side of your prosthetic up to the knee is a life saver.
I'm missing my right leg and I'm regular foot so I wear my leash on my left(front leg) to prevent pulling on my prosthetic.
Well, that's it! Easy Peesy, right? Please send me videos and pictures of you out there ripping. I love it and I hope this helps!
Thank you, Michael Stull and RGP Prosthetics for all your love and support. Thank you Challenged Athletes Foundation, Adaptive Action Sports, Symbiotechs USA, Hawaiian Pro Designs, Chris Grant, JettyGIRL online surf magazine, Ryan Levinson, Oscar Loreto, NMCSD, and my amazing friends for... everything.
Now, get out there! ;)
Friday, April 6, 2012
Friday, February 3, 2012
Tuesday, January 31, 2012
Trials and Tribulations
This is about the issues I had to go through to find a Prosthetist that knew their shit. A Prosthetist is a person who measures, designs, fabricates, fits, or services a prosthesis as prescribed by a licensed physician, and who assists in the formulation of the prosthesis prescription for the replacement of external parts of the human body lost due to amputation or congenital deformities or absences. (Wiki)
1. Once I moved floors at the hospital and my tracheotomy was healed, a Prosthetist started to come and see me. At this point I knew absolutely nothing about prosthetics and what went into it so I just went with the flow. He eventually fitted me with my first prosthetic with the help of the owner of the company. Holy hell it hurt but again, I didn't understand what needed to be done. I was more concerned with returning to skateboarding than anything. The socket just sucked. Super loose so I didn't have control over the leg. It caused sores and bottoming out(this is when your stump hits the bottom of the socket every time you walk). What really drove me over the edge was when I brought up that I wanted to skateboard and his response was, "Danielle there is no way that's going to happen. You don't have a knee. You have to get over it!" Really? Walked out of there and never returned.
2. I was recommended to another company. The fit was slightly better but still the same issues. Again, I said I'm going to skateboard and I saw a picture of Nicole Roundy snowboarding in the XT9. I was stoked to see a girl ripping. I started skating in the prosthetic I had. It worked but super scary because I never knew when the knee was going to unlock on me. I wanted the XT9 because I knew I could get the job done with it. When I would tell this guy about my plans he would just smile and nod his head. I despise it when people don't take me serious and aren't passionate about what they do. What it boiled down to is that this guy didn't advocate for me and wasn't even that good at what he did.
3. Went back to the first company but different location and Prosthetist. This guy would do whatever he could to put the company logo on me. Wanted me to be their little mascot. That was weird within itself. Main issue was the socket. The ischial containment shelf on the socket was gnarly! Way too aggressive. When I say I can't handle something, it's a big issue. I could not deal with this thing at all. I asked him if he could cut it down a bit because I understood, even if it hurt, it was needed. He flipped out, took my socket into the back shop, hit it against the wall and yelled, "Danielle! It's coming off!" I hear a grinder. There's a girl in the room with me that works there. I look at her and said he's kidding, right? If you completely cut that shelf off you lose all control over the leg. He comes back in the room with it cut off. I take my leg and leave. He calls me that night apologizing saying he was having a rough day because of his kid and ex wife. SCREW YOU. Way to be professional. That was a heated battle for a long time.
4. I was out in Florida with Adaptive Action Sports. They took me on a skate tour across the US and this was the last stop. I met a fellow above knee amputee that was a Prosthetist. He wanted to fly me out to Boulder, Colorado and fit me in a socket. I was a bit naive at the time and really frustrated with my leg so I agreed. I get there and they put me up in an awesome hotel and I skated everyday. He fitted me and it was definitely an alright socket but I had to make it clear that I am not flying out to CO all the time to get adjustments. Prosthetic maintenance is very important for me because the volume in my leg fluctuates all the time. He starts to get possesive and acts like I owe him something. Wrong move. What it came down to here was that he was giving kickbacks. Illegal, which I didn't get at the time but quickly understood and besides that, I lost the fit as soon as I returned to San Diego.
5. Where I'm at now for the last 4 years. RGP Prosthetics. Mom and Pop place. Thomas Guth, owner, co-developed the CAT-CAM Ischial Containment suction socket in 1985. This place knows their stuff. My Prosthetist, Michael Stull, is right there with them. Best sockets ever. Unfortunately, pain and sores is the name of the game when you are an above knee amputee but with this guy, the occurence of those sores dramatically decreased. I've never been in a socket that fits so well. Not only that, he's made me a surf leg out of my old parts, a machine gun leg for Halloween, and aligns my snowboarding legs. He advocates for me. The only thing he wants me to do is go out there and shred as hard as I can and he'll put me back together. They don't want to put their logo on me or put me in their advertisements. They just want to see me smile. THAT is what it's about. A genuine, professional, establishment that is passionate about what they do.
I'm writing this to inform other amputees to never settle for bull. I'm not saying my guy is God. It's all personal preference. What I've noticed in the last few years is that there is a lot of people out there with alterior motives who will take advantage of you. Promise you shit you'll most likely not get but the good one's are out there. Don't give up.
Good luck.
1. Once I moved floors at the hospital and my tracheotomy was healed, a Prosthetist started to come and see me. At this point I knew absolutely nothing about prosthetics and what went into it so I just went with the flow. He eventually fitted me with my first prosthetic with the help of the owner of the company. Holy hell it hurt but again, I didn't understand what needed to be done. I was more concerned with returning to skateboarding than anything. The socket just sucked. Super loose so I didn't have control over the leg. It caused sores and bottoming out(this is when your stump hits the bottom of the socket every time you walk). What really drove me over the edge was when I brought up that I wanted to skateboard and his response was, "Danielle there is no way that's going to happen. You don't have a knee. You have to get over it!" Really? Walked out of there and never returned.
2. I was recommended to another company. The fit was slightly better but still the same issues. Again, I said I'm going to skateboard and I saw a picture of Nicole Roundy snowboarding in the XT9. I was stoked to see a girl ripping. I started skating in the prosthetic I had. It worked but super scary because I never knew when the knee was going to unlock on me. I wanted the XT9 because I knew I could get the job done with it. When I would tell this guy about my plans he would just smile and nod his head. I despise it when people don't take me serious and aren't passionate about what they do. What it boiled down to is that this guy didn't advocate for me and wasn't even that good at what he did.
3. Went back to the first company but different location and Prosthetist. This guy would do whatever he could to put the company logo on me. Wanted me to be their little mascot. That was weird within itself. Main issue was the socket. The ischial containment shelf on the socket was gnarly! Way too aggressive. When I say I can't handle something, it's a big issue. I could not deal with this thing at all. I asked him if he could cut it down a bit because I understood, even if it hurt, it was needed. He flipped out, took my socket into the back shop, hit it against the wall and yelled, "Danielle! It's coming off!" I hear a grinder. There's a girl in the room with me that works there. I look at her and said he's kidding, right? If you completely cut that shelf off you lose all control over the leg. He comes back in the room with it cut off. I take my leg and leave. He calls me that night apologizing saying he was having a rough day because of his kid and ex wife. SCREW YOU. Way to be professional. That was a heated battle for a long time.
4. I was out in Florida with Adaptive Action Sports. They took me on a skate tour across the US and this was the last stop. I met a fellow above knee amputee that was a Prosthetist. He wanted to fly me out to Boulder, Colorado and fit me in a socket. I was a bit naive at the time and really frustrated with my leg so I agreed. I get there and they put me up in an awesome hotel and I skated everyday. He fitted me and it was definitely an alright socket but I had to make it clear that I am not flying out to CO all the time to get adjustments. Prosthetic maintenance is very important for me because the volume in my leg fluctuates all the time. He starts to get possesive and acts like I owe him something. Wrong move. What it came down to here was that he was giving kickbacks. Illegal, which I didn't get at the time but quickly understood and besides that, I lost the fit as soon as I returned to San Diego.
5. Where I'm at now for the last 4 years. RGP Prosthetics. Mom and Pop place. Thomas Guth, owner, co-developed the CAT-CAM Ischial Containment suction socket in 1985. This place knows their stuff. My Prosthetist, Michael Stull, is right there with them. Best sockets ever. Unfortunately, pain and sores is the name of the game when you are an above knee amputee but with this guy, the occurence of those sores dramatically decreased. I've never been in a socket that fits so well. Not only that, he's made me a surf leg out of my old parts, a machine gun leg for Halloween, and aligns my snowboarding legs. He advocates for me. The only thing he wants me to do is go out there and shred as hard as I can and he'll put me back together. They don't want to put their logo on me or put me in their advertisements. They just want to see me smile. THAT is what it's about. A genuine, professional, establishment that is passionate about what they do.
I'm writing this to inform other amputees to never settle for bull. I'm not saying my guy is God. It's all personal preference. What I've noticed in the last few years is that there is a lot of people out there with alterior motives who will take advantage of you. Promise you shit you'll most likely not get but the good one's are out there. Don't give up.
Good luck.
Sunday, January 29, 2012
Blue.
Since writing that last post, I can't get this one memory out of my head. Might as well share it with you...
I returned from the bar one night. I was wearing a temporary prosthetic at the time. When I got to bed I took my leg off and looked at it. While I was walking that night I noticed a little more discomfort than usual. When I looked down, I saw a little blue wire about a centimeter, poking out of my skin at the tip of my stump. I touch it and it sends a zinger up my leg. I didn't think too much of it because ever since rehab, the nurses had been pulling little parts of sutures from my leg. I just told myself I would see to it tomorrow.
The next day I got a friend to drive me to UCSD Emergency Room in Hillcrest. She couldn't stay but I had a good book and sat there for eight hours waiting to be seen trying not to think about that little blue wire. Finally, a nurse brought me into the back. She closes the door and asks me what's going on. I take my leg off and show her that little blue wire. She takes one look at it and says, "uh... hold on." She leaves the room and I don't think much of it. When she returns, it's with another nurse... She looks at it, looks at me, and asks, "has this happened before?" I told her sorta. Before my stump completely healed there were some sutures there. She looked at the other nurse and said, "we have to get a doctor."
Ok.
At this time I started to get worried. Two nurses and now a doctor looking at me with this worried expression. When the doctor came in he took a look at it and started tugging on it. It came out a few more painful centimeters but stopped there. He looked at me, "Danielle, this is not supposed to be there."... (no shit, I thought but not in a mean way.)... "They should have taken this out while you were still at the hospital. The problem here is that it is most likely tied in a knot on the end inside your leg."
Great.
I asked him what now? He told me they were going to have to cut my leg open and cut the knot. I told him there is absolutely no way in hell he was going to cut me. If he cut me I wouldn't be able to wear my prosthetic. It felt like an eternity to get that leg and start walking again and now that was going to be taken away again? No fucking way. He asked me what I wanted to do then.
Pull it out.
He warned me that it could cause damage and a lot of pain but I didn't give a shit at this point. I just wanted it out of me and I wanted to walk out of that office. They went and got me a pain killer. Percocet. I thought, this is really going to help me when I've been on dilauden and oxycontin for the last few months but whatever. I didn't care anymore.
The two nurses came in. Both on either side of me. The doctor sat down, "are you ready?" He starts pulling. The pain shot through me like an electric current. From everything I'd been through, my pain tolerance was pretty high but this... this was different. I squeezed the nurses' hands as hard as I could and they held me down. I yelled in pain but told him to keep going. I opened my eyes for a brief second to see him pulling this wire, now 5 inches long out of my leg that made my skin fold up like an accordian at the end of my stump. The tears came. The anger was with it. Everyone yelled, "it's almost out! hold on!" And then it was done. Everyone was quiet. Seven inches of blue wire was now out of me. I told them I needed a second and I wanted to keep that suture. When they left I tried so hard to swallow those tears and anger. The physical pain was gone but my head was a complete mess. I was broken.
I sucked it up enough and got the hell out of there. Suture in a little cup. I call the two girls to come pick me up and I rushed out the front doors. A tall, wide chested man that was working the counter followed me. I sat down on a bench and absolutely lost my shit. Cries, anger, and sadness that made me crumble. He wanted to take me back in and get me more pain medicine. Not that type of pain, bro but definitely appreciated the company.
The girls pull up and I pull myself together. I thank the guy and get into the car. At that moment, I had hit my bottom. I couldn't fucking deal. I told the girls that I wanted to know everything. Every last detail of my accident because I couldn't take the confusion anymore that caused even more pain.
They said yes and I finally got away from that place.
I returned from the bar one night. I was wearing a temporary prosthetic at the time. When I got to bed I took my leg off and looked at it. While I was walking that night I noticed a little more discomfort than usual. When I looked down, I saw a little blue wire about a centimeter, poking out of my skin at the tip of my stump. I touch it and it sends a zinger up my leg. I didn't think too much of it because ever since rehab, the nurses had been pulling little parts of sutures from my leg. I just told myself I would see to it tomorrow.
The next day I got a friend to drive me to UCSD Emergency Room in Hillcrest. She couldn't stay but I had a good book and sat there for eight hours waiting to be seen trying not to think about that little blue wire. Finally, a nurse brought me into the back. She closes the door and asks me what's going on. I take my leg off and show her that little blue wire. She takes one look at it and says, "uh... hold on." She leaves the room and I don't think much of it. When she returns, it's with another nurse... She looks at it, looks at me, and asks, "has this happened before?" I told her sorta. Before my stump completely healed there were some sutures there. She looked at the other nurse and said, "we have to get a doctor."
Ok.
At this time I started to get worried. Two nurses and now a doctor looking at me with this worried expression. When the doctor came in he took a look at it and started tugging on it. It came out a few more painful centimeters but stopped there. He looked at me, "Danielle, this is not supposed to be there."... (no shit, I thought but not in a mean way.)... "They should have taken this out while you were still at the hospital. The problem here is that it is most likely tied in a knot on the end inside your leg."
Great.
I asked him what now? He told me they were going to have to cut my leg open and cut the knot. I told him there is absolutely no way in hell he was going to cut me. If he cut me I wouldn't be able to wear my prosthetic. It felt like an eternity to get that leg and start walking again and now that was going to be taken away again? No fucking way. He asked me what I wanted to do then.
Pull it out.
He warned me that it could cause damage and a lot of pain but I didn't give a shit at this point. I just wanted it out of me and I wanted to walk out of that office. They went and got me a pain killer. Percocet. I thought, this is really going to help me when I've been on dilauden and oxycontin for the last few months but whatever. I didn't care anymore.
The two nurses came in. Both on either side of me. The doctor sat down, "are you ready?" He starts pulling. The pain shot through me like an electric current. From everything I'd been through, my pain tolerance was pretty high but this... this was different. I squeezed the nurses' hands as hard as I could and they held me down. I yelled in pain but told him to keep going. I opened my eyes for a brief second to see him pulling this wire, now 5 inches long out of my leg that made my skin fold up like an accordian at the end of my stump. The tears came. The anger was with it. Everyone yelled, "it's almost out! hold on!" And then it was done. Everyone was quiet. Seven inches of blue wire was now out of me. I told them I needed a second and I wanted to keep that suture. When they left I tried so hard to swallow those tears and anger. The physical pain was gone but my head was a complete mess. I was broken.
I sucked it up enough and got the hell out of there. Suture in a little cup. I call the two girls to come pick me up and I rushed out the front doors. A tall, wide chested man that was working the counter followed me. I sat down on a bench and absolutely lost my shit. Cries, anger, and sadness that made me crumble. He wanted to take me back in and get me more pain medicine. Not that type of pain, bro but definitely appreciated the company.
The girls pull up and I pull myself together. I thank the guy and get into the car. At that moment, I had hit my bottom. I couldn't fucking deal. I told the girls that I wanted to know everything. Every last detail of my accident because I couldn't take the confusion anymore that caused even more pain.
They said yes and I finally got away from that place.
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